Amelie’s 2nd surgery

Scottish Rite Jan 2013
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Clowning around in the day surgery area. 

On December 20th we had a one year check up with the surgeon at Texas Scottish Rite hospital, since they told us in December 2011 they wanted to let her hands grow for a year. We arrived and got checked in and the admissions woman said that Southwest Airlines had donated pillow pets for the patients. Amelie chose a lady bug and then the woman noticed Nadia and let her pick one too. As we walked down the hall to the radiology department some more people where there handing out large helium balloons. Amelie was given a panda and Nadia a jet. So the girls were excited before we even made it to our first appointment.

Scottish Rite  Jan 2013
Amelie playing around while we wait on the hand team appointment.

Dr. Oishi came in the room with his nurses and a surgeon from Belgium who I think is training at TSRH.  He had Amelie play with some toys and then he felt for the bones in her hands. He showed us the x-rays and told us what he would like to do for her this time around. We agreed and his nurse returned to ask if we could be ready on January 2nd. We agreed and the hospital got everything set up.

Scottish Rite  Jan 2013

We arrived at Scottish Rite at 7 am and went straight to the Day Surgery area. The nurse Anne led us over to our waiting area and told one of us to head downstairs and get Amelie signed in. Everything that followed was just like her first surgery. She even had the same anesthesiologist who came to speak with us in advance. They weighed her and checked all her other vitals and we tried to keep her busy until they were going to give her the “goofy juice.” Last time she had only been home with us about 6 weeks when she had surgery and didn’t speak English at all. This time she was quite hilarious once the relaxation kicked in.

Scottish Rite  Jan 2013
This was shortly before surgery. We changed her into her gown and she was being silly with the Magna Doodle.

They came to get her and told us we could take a pager/buzzer and leave our cell number with them. We headed downstairs to the Crayon Cafe for breakfast. We both got gigantic omelets that were a whopping 2.50 each 🙂 All the while we were receiving lots of love, prayers and encouragement via FB and text messages. About 90 minutes later they called and said that the surgeon was done and wanted to speak with us, so we went back to the day surgery area. He told us that her foot was really easy to do. Then he told us everything he did with her hand. They released her pinkie, cleaned up the banding to try and make it look “prettier” and put a temporary pin in her middle finger to try and fuse the two bones together.

Scottish Rite  Jan 2013

She woke up in recovery and they brought her out, but she fell asleep again pretty quickly. We were surprised and relieved to see that she didn’t have a cast on her leg. Instead she has to wear an ace bandage on it for just five days. While waiting on meds and for her to be discharged, the PA reminded us about taking care of the cast. She also told us that because of the pin in her finger she will now have to wear the cast for five weeks instead of three. Then we return to have the pin “blown out” and see if the fuse worked. I am interested to see how they do that, but they did tell us that the key to it is for us parents to be calm while they blow it out. I am sure that will be it’s own blog post once we actually see what happens.

Scottish Rite  Jan 2013

Scottish Rite  Jan 2013
Being silly with Daddy while I sign documents and wait for her discharge.

Amelie did a great job and Texas Scottish Rite Hospital for Children is amazing! We are also thankful for all the love and prayers for our family.

Texas Scottish Rite 90th Birthday

TSRH 90th birthday
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(The base of the cake was real – I don’t know about the rest)

Last week we attended the “Treasure Street” event for Texas Scottish Rite’s 90th birthday. We love this hospital!! It’s completely astounding how much the staff there cares for the children and families! It’s also amazing that in 90 years they have never charged a patient for care. If you haven’t been reading our blog for long, go here and here to see why we have been so blessed and wanted to give back.

Treasure Street - TSRH 90th

Darwin, Kaye, Paula, Roger, Me, Mike

Our group had so much fun! The party was in a giant air conditioned tent set up in the parking lot of the hospital. They had a cheese station, pasta station, salad station and taco station plus drinks. They had a very large silent auction area and we won a few items. The event was sold out and one of the employee’s said they were expecting 1400 people.

Treasure Street - TSRH 90th

Treasure Street - TSRH 90th

Treasure Street - TSRH 90th

Lee Ann Womack was in concert after the birthday toast and cake cutting. She was great even though I knew exactly 1 of her songs. The best part was seeing Kaye so excited about seeing her in concert and having such a great time.

Treasure Street - TSRH 90th

Treasure Street - TSRH 90th

Treasure Street - TSRH 90th

Cute shot of Kaye and Darwin watching the concert.

The entire night was classy and fun and we were so blessed to share it with people we love. I can’t wait to see how much money they raised once the online auction for big items closes!

Happy Birthday Texas Scottish Rite and thank you for all you have done for sweet Amelie!

Scottish Rite Sponsor Party

Sept 20, 2011
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Last month Mike and I attended the Texas Scottish Rite Treasure Street Sponsor party. They invite everyone who sponsors at a certain level and up. Then the big fundraising event is later this week.  They did such an amazing job on Amelie’s hand this spring and since the hospital is free for Texas residents we felt we should sponsor and support this wonderful place! We arrived, were given name badges and then were put in tour groups. They took us to the day surgery area where Amelie went and did a presentation about lengthening a young girl’s leg. It was AMAZING! Mike took photos and they are all in the photo album.

Sept 20, 2011

Then we heard from some of the doctors that run the neurology department.

Sept 20, 2011

From there we saw the motion science department that help children with Cerebral palsy (CP) and other walking issues. They even had a teen in the motion capture gear, which was very cool.

Sept 20, 2011

Then they had music and food out in the main atrium.

Sept 20, 2011

Such a cool dessert set up and they had a little taco bar and carving station. The people who cook for the hospital cafeteria did all of the catering for the event and it was great!

Sept 20, 2011

Amelie hand update

So I have received several requests to do a “before” and “now” post showing Amelie’s hands. She was barely home 6 weeks before her surgery so it’s hard to remember what her left hand looked like before.

Hand Update 9.8.2011
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Here is how it looked from birth. All 4 fingers on her left hand fused together sort of like a mitten. Little crevices for food to get stuck in and so on. From the day we met her we were amazed at the great use she had of it.

Hand Update 9.8.2011

Here she is playing with stickers a few days ago.

Hand Update 9.8.2011

Hand Update 9.8.2011

Look at the detail work here – the pinkie on her right hand is astoundingly strong.

Hand Update 9.8.2011

“See! See! See!”

IMG_4692

I took this last month. She has the pieces of a nesting sock monkey on her fingers. (thanks Tricia!) I think this is one of the best shots of her left hand and how far she can separate her fingers now. Her hands get stronger every day and she continues to amaze us. In truth when we are going about our daily life I hardly ever think of her hands. It takes seeing her drop something due to her fingers being short/not strong enough OR some stranger staring/commenting about her to make me think about it.